Policies, Politics, Tweet-In Thursday

Diabetes is not a game, but far too often, those living with the chronic disease are a footnote in the policy playbook and sacked in the middle of a political football field.  But thanks to DPAC, the Diabetes Patient Advocacy Coalition, there’s Tweet-In Thursday, an opportunity for those living with Type 1, Type 1.5, Type 2, as well as, those who simply care to send a collective message:

Restricting access to diabetes medications, devices, and supplies harms people. Click To Tweet

Diabetes is self-managed and everyone’s management is individualized.  Patients and their healthcare teams should define the best path for living well with diabetes. Government bureaucrats and insurance company cost accountants should not veto doctors’ orders. [Source: DPAC]

For some time now, I’ve been on the soapbox about CGM legislation, bills to provide Medicare coverage of continuous glucose monitor devices for people with diabetes. The lack of movement to get the bills passed through the U.S. House and Senate is pathetic.  I even made a musical parody about it: Medicare and Mondays.

If you agree with the tune I’m singing, seething about Medicare’s failed competitive bidding program for diabetes testing supplies or outraged by United Healthcare’s decision to restrict patient choices on all types of diabetes devices and medications, let’s get Congress to care.  Here’s what you can do on Tweet-In Thursday (5/12/16, 8 p.m. EST) to raise our collective voices.

  • Use hashtags: #Vote4Diabetes #SuspendBidding #DiabetesAccessMatters  (Note, if you post to LinkedIn, be advised that they don’t take too kindly to hashtags)
  • Target members of the United States House of Representative and Senate who represent you. Call them out and let them know that we’re  holding them accountable. If you follow the DPAC instructions here, it’s a piece of sugar-free cake.
  • Tweet the following message before the Tweet-In

Join me on Thursday, May 12th at 8pm EST. DPAC Tweet-In. Help save lives of people with #diabetes.… Click To Tweet

  • Tweet the following message before, during and after the Tweet-In

Docs & patients should choose best treatments. Not @myUHC. #DiabetesAccessMatters #Vote4Diabetes… Click To Tweet

  • Tweet the following messages during and following the Tweet-In

.@CMSGov program ⇧ costs & deaths. #FAIL Learn more. http://bit.ly/1SLLhBH #SuspendBidding…… Click To Tweet

.@CMSGov restricting access at the cost of lives. #SuspendBidding #Vote4Diabetes… http://wp.me/p7bXYc-qn via… Click To Tweet

Hey @askUHC You think you know better than my doc what is best for me? #MyPumpMyChoice… http://wp.me/p7bXYc-qn via… Click To Tweet

deaths? money? access? @CMSGov #suspendbidding #Vote4Diabetes: http://bit.ly/1SLLhBH http://wp.me/p7bXYc-qn via… Click To Tweet

I may be Poed, but I am not knocked out. I will participate in the Tweet-In and use my platforms, including The Bonnie Sher Show, Boomer Life, to change policies and end the politics of diabetes care.  Join the social sit-in to save and improve the lives of those living with diabetes.  Here’s another hashtag I invite you to use: #DiabeticLivesMatter

Ready to get involved?  Feel free to share your thoughts in the comments section of this post.

Title photo credit: The qspeaks under Creative Commons License